Monday, December 26, 2011

The story so far...

So where did this all start?

I remember sitting on a friends balcony overlooking Newcastle Harbour (Australia) and talking with friends about what we wanted to accomplish in the next few years. Being a fairly active bunch, someone said they wanted to run a marathon. I said I'd love to do that, but having been a middle distance runner as a teenager I thought I'd push too hard and hurt myself - I'd had to stop running competitvely at age 16 due to a knee condition. At the time I was volunteering as a surf lifesaver at my local beach and was doing some ocean swims. The only running I did then was beach sprints. Bike? My mountain biking had pretty  much dried up since leaving the UK and I had a rusty old thing I used to ride to work sometimes, but mostly to the beach.

A couple of good friends from the surf club were trying their hand at triathlon and suggested that I should do the sprint triathlon. I politely declined, saying that I could be persuaded to be part of a relay. My swimming was strong enough, but I wasn't a competitive speed. My bike skills were good, but just riding fast on the road? Where was the fun? And running, well, I was good over the shorter distances, but I hadn't done any competitive running for nearly 15 years! I carried on with my beach sprints and my ocean swims, but racing 18 year-olds when you're 29 is tough on a 60m sprint. So I moved to the 2km beach run. Then I did my first 10km road race since the 1980s!

Then, sadly, my time in Australia was over. I said goodbye to my friends and moved to the southwest of the USA. It didn't take long for a colleague to sell me a road bike (a beautiful 1994 Eddy Merckx) and I found out that not only did I still love cycling, but that road biking was awesome! In the first year road biking I rode my first century and won my age group in my first road race. Several centuries later, I entered a local duathlon (10km run, 40km bike, 5km run), just for the challenge. With too little run training and a snowy race day (the bike course was cut to 30km for safety reasons) I pushed myself to a time that I didn't expect. Sure, it wasn't a brilliant time. I didn't win. That wasn't why I was there. But it was fun! And it gave me something to focus on, to concentrate on getting to know myself and my limits.

While all that was happening I had noticed a blurry spot appear in my left eye. When it didn't go away after a couple of weeks (stupid, I know) I saw an optometrist who referred me to a macular specialist. Cystoid macular edema, they said, with some other guesses at the cause. After a short while I flew to Dallas to see a uveitis specialist, who confirmed idiopathic uveitis. Idiopathic = unknown cause. Great. Steroid treatments for the swelling in my retina had given me cataracts and secondary glaucoma. So my doctors changed to a less effective, but safer treatment. The glaucoma went away, but the swelling remained. And now I have implants of a different kind of steroid in my eyes, to slowly release the medicine. And since my edema is recurrent, I've been put on immuno-suppressants as uveitis is typically an auto-immune disease.

August 2011: Nearly three years after that evening on the balcony at Newcastle Harbour, I did my first triathlon. Sprint distance (B:20km/S:400m/R:5km) and finished in 1hr10min. 20th overall and 2nd in my age group. The only person to finish in less than one hour was Viktor Zyemtsev, a professional triathlete and 9-time Ironman champion!

October 2011: Ironman Austin 70.3. My second ever triathlon, and with a target time of 6 hours I was happy to get 6hr7min. The swim was fantastic, and probably one of my fastest open water swims. The bike leg was on some terrible roads and I stopped twice to fix a leaky rear tyre. First time I checked for obvious holes and just re-inflated the tube. Second time I had to change the tube. I counted about 12 minutes lost, in total, for the flat. The run was three laps, and I really hurt on lap 2 - the heat was intense and I was putting all my energy into a positive attitude. The feeling of finishing was amazing, and I really have to thank my girl for being there, supporting me and cheering me on. In fact, I have to thank all the random strangers, both off and on the course, for being so amazing and supportive. The atmosphere at Austin was unbelievable and really made the day!

After Austin I started planning my assault on the full Ironman distance. Since running appeared to be my current weakness, I entered a half-marathon. At high altitude (7500ft), with significant hills. Training between Austin and early December was mostly running. I wanted 1hr45. No-one was more surprised than me when I managed a 1hr36! So now I'm paid up for Ironman Wales, and I know I can do it. It's supposed to be a hard course (yes, it's Ironman, they're all hard), but having family there will make it the easiest course possible.

Why Ironman? Because it's there, and I want to prove I can do it. Finishing is a must, but finishing in daylight would be awesome. That gives me about 12 hours to do it. To hit the top 10 in my age group I'd need about 10hr20, based on last year's results. Is it possible? I'm not looking to win, or qualify for Kona, but I will go as hard as I can while ensuring that I finish. And I will not waste the opportunity - I may be fighting to keep my vision, and training while taking immuno-suppressants - I will tell anyone who will listen that uveitis is a leading cause of preventable blindness, but that too few doctors are trained in ocular immunology. That makes diagnosis difficult and makes it hard to get proper treatment in time. It also means that resources for research into this (currently) incurable disease are limited.

My hopes for this year are long-term remission of my uveitis and macular edema, a sub-12 hour time at Ironman Wales and increased awareness and support for uveitis sufferers. I will be starting some fundraising in the new year, for charities in my home country, and in my current home. Watch this space.

Saturday, December 17, 2011

Winter Updates

Being a relative Luddite when it comes to social media, this blog may take a little time to get going. Also, it's winter, which means off-season (can't ride road bikes in snow) so training is low-key right now. To help with keeping my social media aspirations alive, I've added my (also new) Twitter to this blog. It was a bit ambitious starting both on the same day, but this is an ambitious venture...

Yesterday was a good day of cross-training. I went snowboarding with friends and had a blast. That makes three days this season so far! Conditions were awesome - well-groomed, still soft snow on most runs and delightfully deep powder on others. I risked two black runs, one was great (until I had to swim out after misjudging the exit from the run) and the other was too fast and too bumpy. One day I will conquer the moguls, but I think this season I'll stay away from them. I saw one snowboarder yesterday who won't be riding again this season and trying to master the bumps is likely to see me get hurt. There will be no injuries this year.

Well, it's time to kick back and enjoy the rest of the weekend. Then there's yet another eye appointment on Monday. I think I've actually been to more doctors appointments in the last 2 years than in the previous 32 years, all while I'm in possibly the best shape of my life (but still not Ironman-ready). Hopefully they can do something for the blurriness that's creeping back in my left eye.

Winter updates: I will post, and maybe someone will read it. 2012 will bring new levels of training, blogging and tweeting. Eyes will be injected, scanned and operated on. Doctors will scratch their heads and write prescriptions for various systemic meds. It's going to be an awesome year!

Sunday, December 11, 2011

279 days

This blog is a record of my journey to raise money and awareness for Uveitis, a rare eye disease. 279 days is how long I have before Ironman Wales, an event I've chosen to do for myself and for the benefit of the uveitis sufferers everywhere. Uveitis sufferers like me.

Ironman: A triathlon covering 140.6 miles (226.2 kilometres). The event is broken down into a 2.4 mile swim, followed by 112 miles of cycling, then a 26.2 mile marathon run. The cutoff is 17 hours, and while the pros may  finish in 9 hours, I'm looking to finish in 12.

Uveitis: According to various web sources, uveitis is one of the leading causes of preventable blindness in developed countries. It's an inflammation of the uvea, in the middle of the eye. Symptoms include blurred vision, and cataracts and glacuoma are common complications. It can be caused by various auto-immune diseases, but in many cases the cause is unknown.

Cystoid Macular Edema: Cyst-like fluid leakage in the macula - the central portion of the retina - causing painless retinal swelling. While painless, it causes blurred and distorted central vision and can lead to permanent retinal damage. The exact cause is unknown, but it often accompanies uveitis.

These three things are now part of my life and it's my sincere hope that one day all that is left of the last two are memories.


This is going to be a long journey to a very long day. Hopefully I can make a positive difference to more than just my life with my attempt on Ironman Wales - a race I've chosen for its proximity to my family, and to my 35th birthday. I will be an Ironman before I turn 35. My triathlon experience is limited to just two races: one sprint distance, and one Ironman 70.3. I've never run a marathon, and my first half-marathon was at the 70.3. My second half-marathon was yesterday. My longest swim to date was the 1.2 miles at the 70.3 race.

I will race Ironman, finish in less than 12 hours, and on my way I will fight for an end to uveitis. I have an Iron Vision.